I sure could use a prayer or two

Silverbullet said:
Mark my brother I'm in prayer , hoping for good answers to our needs.
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Thanks. The withdrawals are pretty much over. I'm doing better, but still can't walk. Off ros Pittsburgh tomorrow to see a tremors specialist and neurologist.
 
mark_f said:
Thanks. The withdrawals are pretty much over. I'm doing better, but still can't walk. Off ros Pittsburgh tomorrow to see a tremors specialist and neurologist.
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upmc?
 
It's noon Mark saying a prayer the drs give some good news . I'm hoping the best , away to help your needs .
 
I went to Pittsburgh today to see a tremors specialist. Because I can't walk, they can't check my gait for signs of Parkinson's so I have to go back and get a special scan to look for Parkinson's in the brain. I managed to get my brother to make time to take me today but I don't know how I will go get the scan. I seriously don't think I can drive the 95 mile trip, but I have to try or not go it seems. I guess we will see.
 
Hey Mark,
Regarding transportation, I suggest you ask your healthcare providers if they know of any transportation resources to aid the handicapped.
I live in a fairly rural area with zero public transportation within 15 miles, except there is transportation available for medical treatment. I almost needed to use it and that's why I became aware. Good luck with your search.

I hope your trip today was more productive than "Can you walk a straight line?", "I can't walk.", "You'll have to come back." How frustrating!

Hang in there. Maybe some members can help?
 
extropic said:
Hey Mark,
Regarding transportation, I suggest you ask your healthcare providers if they know of any transportation resources to aid the handicapped.
I live in a fairly rural area with zero public transportation within 15 miles, except there is transportation available for medical treatment. I almost needed to use it and that's why I became aware. Good luck with your search.

I hope your trip today was more productive than "Can you walk a straight line?", "I can't walk.", "You'll have to come back." How frustrating!

Hang in there. Maybe some members can help?
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There is only local transportation help in this hick area. Nothing to help with the long distance.

That's what I got........ "Can you walk a straight line" ...."I can't walk" ....... And "you have to come back"

The doctor was nice. She spent about an hour making me do silly movement exercises to test function. She confirmed that I have severe neuropathy, that I can't walk, and they are not concerned about that. She is only concerned about the tremors ( as she is a tremor specialist). So now I have to go back for a special scan to test for Parkinson's disease. They would normally diagnose it by examination of my gait and walk but since I cant walk they have to resort to other methods. So after I get the scan, if I can get there for it , then I have to go back to discuss the findings and what to test for next if it is not Parkinson's. I see several trips required that I can't make because there is no way to get there.

It will be close to impossible for me to make that trip myself, as i cant drive that far or walk as far as required, even with my crutches. But it seems I will have to try.

I have 2 retired brothers and a son close by and absolutely no help. They are always busy or just don't want to. They haven't spoken to me or seen me in years and I don't even Know why.

Life just sucks sometimes. I m ready to quit all the doctors, all the meds, and just wait to get better or die which ever comes first . With my heart trouble,I already know my life expectancy is very short from here and all this s**t don't make it any better. I have an ascending aortic aneurysm that has started growing again ( the super high blood pressure and 200 pulse rate during the narcotics withdrawal didn't help this either). If it ruptures, I'm dead in 30 seconds. If they decide to operate on it, I will be lucky to survive the surgery and if I do the long term survival prognosis is poor at best. Looks like I am damned if I do and damned damned if I don't. Welcome to my world.
 
Mark , I wonder if there may be away , I here of this uber or something like that. People get paid for driving but I don't know how it works. Or if will work. I do know about family my mother disowned me because of my disability . I wasn't able to visit and spend the time she needed I guess.
But two sisters haven't been in contact in twenty years either. I know it hurts , we have more in common I guess. If it wasn't for my daughter's I'd be screwed for Dr visits and testing. God I'm praying please help us in this need.
 
Silverbullet said:
Mark , I wonder if there may be away , I here of this uber or something like that. People get paid for driving but I don't know how it works. Or if will work. I do know about family my mother disowned me because of my disability . I wasn't able to visit and spend the time she needed I guess.
But two sisters haven't been in contact in twenty years either. I know it hurts , we have more in common I guess. If it wasn't for my daughter's I'd be screwed for Dr visits and testing. God I'm praying please help us in this need.
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I know what you mean.

I have a heart that requires a pacemaker to keep beating, an aneurysm that can kill me anytime and maybe but highly risky can be fixed but not forever, I can't walk, I hurt 24 hours a day and nothing can be done about it, and now I have another incurable disease yet to be determined. I can't be hiring drivers for hundreds of dollars to carry my butt back and forth 100 miles to a doctor and hospital. Yes ...... I am tired , overwhelmed, and I just don't care anymore. I am losing faith fast.
 
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